The Effectiveness of a Parent Empowerment Intervention for Caregivers of Children with Cystic Fibrosis: A Randomized Controlled Trial

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dc.contributor.authorDönmez, Hatice
dc.contributor.authorArslan, Fatma Tas
dc.date.accessioned2025-01-12T17:19:52Z
dc.date.available2025-01-12T17:19:52Z
dc.date.issued2024
dc.departmentKMÜ, Sağlık Bilimleri Fakültesi, Ebelik Bölümü
dc.description.abstractThis paper focused on the effectiveness of a parent empowerment intervention based on nursing education (PEINE). This study examined whether the intervention improved the quality of life of children with cystic fibrosis (CF) and improved their caregivers learn about the disease and develop problem-solving and coping skills. This randomized-controlled trial used a pretest-posttest parallel-group research design. The sample consisted of 48 parents (caregivers) of children with CF. Participants were randomly assigned to an intervention (n = 24) and a control group (n = 24). The intervention group received PEINE and standard care and treatment for ten weeks. The control group received standard care and treatment. Data were collected using a Disease Information Survey (DIS), the Ways of Coping Inventory (WCI), the Problem-Solving Inventory (PSI), and the Cystic Fibrosis Questionnaire (CFQ-R). After the intervention, the intervention group DIS scores (d: 1,627 [CI: 0.934,2.305], had more correct answers than the control group. Nursing interventions were effective (p < .001). There was no significant difference in the mean pretest-posttest PSI scores (d: 0.378 [CI: -0.221-0.972], posttest WCI scores (d: 0.239 [CI:-0.356-0.831]) between the intervention and control groups (p>.05). There was a significant difference in the mean posttest CFQ-R scores between the intervention and control groups (d: 1.363 [CI: l.698, 2.015]);(p < .001). PEINE increased the intervention group participants develop disease-management skills. However, the increase in their PSI and WCI scores was statistically insignificant. PEINE also increased the quality of life of children with CF. Parents of children followed in pediatric pulmonary diseases participated in the study. Parents were informed during outpatient clinic visits. After the first meeting, the children and parents who voluntarily agreed to participate in the research were contacted by phone. The outpatient nurse assisted in communicating with children and parents.
dc.identifier.doi10.1080/24694193.2024.2411986
dc.identifier.endpage283
dc.identifier.issn2469-4193
dc.identifier.issn2469-4207
dc.identifier.issue4
dc.identifier.pmid39382937
dc.identifier.scopus2-s2.0-85206094952
dc.identifier.scopusqualityQ2
dc.identifier.startpage267
dc.identifier.urihttps://doi.org/10.1080/24694193.2024.2411986
dc.identifier.urihttps://hdl.handle.net/11492/10243
dc.identifier.volume47
dc.identifier.wosWOS:001338456400001
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Sceince
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.institutionauthorDönmez, Hatice
dc.language.isoen
dc.publisherTaylor & Francis Inc
dc.relation.ispartofComprehensive Child and Adolescent Nursing-Building Evidence For Practice
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectNursing intervention
dc.subjectempowerment
dc.subjectchildren
dc.subjectCF
dc.subjectcaregiver
dc.subjectquality of life
dc.subjectcoping
dc.subjectstress
dc.subjectproblem-solving
dc.titleThe Effectiveness of a Parent Empowerment Intervention for Caregivers of Children with Cystic Fibrosis: A Randomized Controlled Trial
dc.typeArticle

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